Wednesday, December 31, 2008

HAPPY NEW YEAR

On one hand, I can't believe that 2009 is almost here - but on the other hand I never thought that the last 16 weeks would ever end! I only have one more scheduled chemo treatment. That will happen next Monday if my white count remains high enough. This Monday, it was 1900 or 1.9. That's way more than it has been on the week after my cisplatin. I do know that he reduced my dosage down to 60% it's original strength. I guess that's what kept my count from dropping so low this week. Anyhow, Monday ,Amy took me because she was off of work. I only got the 1 dose of Navelbine so we weren't there but a couple of hours.I did find that the nausea was still with me . I came home and took my regular nausea medicine on schedule and took a nice long nap!
I forgot to tell you last week about having a day of pampering. (Of course, Ronnie has actually pampered me for the last several months!) This day was Ginger's. She went and bought me a copy of Mamma Mia! and brought it over Saturday. We had total girl day. We put in the movie on the big screen T.V. and she brought out her manicure equipment! I had a total pedicure with everything from foot soaking to red nail polish! I actually have only had one official pedicure that I can remember because my toenails are so ugly! But this foot pampering sure did feel good! Of course, she did manicure also. You know how you look down on your hand and you wonder when your mother's hand appeared on the end of your arm? Well, that's the feeling I had. Mother's nails had developed ridges over the years and I have noticed that mine have done the same. The difference though is that Mother always had strong, long, pretty nails and mine have always been short and thin. Maybe they are changing to be more like hers! I can work on the ridges if only I had nails strong enough to take some abuse. Of course, right now, I don't have the strength to do much hard work so my nails are growing better. I have started taking prenatal vitamins to get the added iron , so I'm thinking this may help my nails to be stronger also! But I know before long my strength will return and I can get out and work in my flower beds. They are looking kinda sad.
Thanks for pampering me Ginger!Love ya lots!
My cousin, Calva, is still waiting on all the MRIs to be done so she can start her radiation. She is supposed to have 6 weeks of radiation - 5 days a week. (That is the same schedule I am going to have if radiation is necessary for me.) After the rounds of that she will have gamma knife treatment done on what's left of the tumor. Keep praying for both of us, please.
Love you all and HAPPY NEW YEAR AND MAY GOD RICHLY BLESS EVERY ONE OF YOU!

Friday, December 26, 2008

Merry Christmas

Merry Christmas everyone!
I am happy to report that I had a good day on Christmas Eve. That's when we got together at Starla's house for our present exchange. We each brought finger foods so we had a good variety of snacks. Starla and Aaron drove in from Andrews that day so we waited till about 5:30 to get together. I was so surprised when Michelle and Brandon gave me a camera! I haven't had one in several years. It is so cute and small. I hope I will remember to take it with me wherever I go so maybe I will remember to take pictures. My pictures around the house definitely need to be updated!
Ronnie is almost through renovating our master bath. It looks sooooo good. What a difference changing tile will do. We used 18 X18 pieces of travertine instead of the standard 4 X 4 white squares! We are still waiting on the shower door to be made , but we are just using a shower curtain in the meantime. I think the next step of our project will be putting wood floors down in the bedrooms. Ronnie wants a break from bathroom project for a while! I can't wait though to get the hall bath done because it is the ugliest bath ever! But I will be patient.
I had my chemo on Monday as scheduled. Shara took me and got to experience the long day, although , it didn't take as long as usual. He has reduced the dosage of the cisplatin to 60 per cent strength. So I guess maybe it didn't take as long because of that. The nausea didn't really hit me till Thursday, so I slept probably 18 hours out of the 24 hour day! Thank goodness for medications! Today is Friday so I will hopefully be getting over some of the nausea by this evening. This was my last week to get the cisplatin and navelbine together. The next 2 Mondays, I will only get the navelbine if my blood count is high enough. Then I should be through with chemo! I thought I would never get to this point!
Keep praying for me as the next weeks pass. I am supposed to see a radiation dr. sometime in January or February. Also, keep my cousin, Calva, in your prayers still. She should see the radiation dr. this next week to see what her treatment will be for her tumor in her brain.

Thursday, December 18, 2008

Just a week till Christmas!

Here it is Thursday morning! I was able to get my cisplatin and navelbine infusion on Monday. My blood had come up to it's normal numbers. I did talk to Dr. Redrow on Monday (Amy and Starla were with me ) and he seemed to think everything was going fine. He didn't indicate that there is any worries over all the treatments that I have not been able to take. He will see me again the second week of January and reassess my condition then send me over to a radiation specialist to see whether I will require radiation also. I'm hoping that they will do another pet scan so they can make sure it hasn't shown up somewhere else.
The nausea is better this week because maybe I have my pill taking schedule under control a little bit better! I will just sit real still when the wave starts rolling in!
We are getting our Christmas schedule all worked out. Of course, the important part of the festivities is what goodies to make. We decided we just wanted snacky type meal on Christmas Eve instead of full-blown holiday meal. Remember, we did that for Thanksgiving at Starla's. So for Christmas - it won't be so healthy!
I think all my shopping is done. I really didn't do too much. A couple online purchases and a couple of someone else going and doing my picking! Been pretty easy for me, huh? We did some tree switching this year. Starla took Amy's big tree because Amy took my tall skinny tree because I borrowed Grace and Lily's little tree to put in my living room! Starla also is using my outdoor lights because that was not something that Ronnie was going to mess with this year!
I asked all of you last week to remember to pray for my cousin Calva as you lift my name up. She had a biopsy done and found out the results on Tuesday. She does have a neural-pineal blastoma. A malignant tumor on her penial gland in her brain. They have told her that it is not related to the colon cancer! She is waiting to get with an specialist for this to decide the treatment plan ,probably radiation. She is still very brave and positive, but still remember her name to God. Thanks!

Tuesday, December 9, 2008

A little bit of Navelbine

Hi Everyone!
This week was Gwen's week to be my driver. We went to the oncology center prepared for them to take my blood and call me back and tell me "sorry, your white count is still too low". So, I was surprised when the nurse actually took me back to the infusion area. I asked her if I passed the test this time. She said no - that my count was still the same as last week.(600). But Dr. Redrow looked at my chart and for some reason decided that I at least needed to get a little of the Navelbine in me! He cut the dosage in half and they told me to be especially careful of where I went and who I got around this week. She said the Navelbine could make my count go lower before next Monday. I actually have an appointment with Dr. Redrow then. He may have to put me on Neuprigin shots to boost my W.B.C. We'll see. One of the nurses also told me to start trying to take my Marinol on a regular basis. That way my body can get more used to it and it will make me have an appetite and keep me from having a queasy stomach every time I eat something. Who knew that I would ever have trouble with eating!
Well, it's getting closer and closer to Christmas. I am not going to be able to go anywhere to shop , so the buying that I have done so far is either online(which is still scary to me) or the girl's have shopped for me. I have one dilemma,though. I always buy everyone a new ornament for my tree every year. That means 12 new and different ornaments. I decided to be creative and make some since I was home anyway. I got Amy,Starla,Michelle and I one figured out and made yesterday. I'm having trouble thinking of something for everyone else. I guess I have lots of time available to think , don't I?
Brandon is scheduled the have his left knee operation done on this Thursday. It should go as smooth as the other one did , so he'll be recuperating the rest of this year.
I'm still asking for each of you to remember me in your daily prayers and please include my cousin, Calva, as you pray. Yesterday(Monday) she had a brain biopsy done on some sort of mass they found in her brain. They should have the results sometime in the next 2 days. It could just be some sort of calcification, but it is something that is causing the spinal fluid not to drain properly, and causing some swelling in her brain. She remains in good spirits. They will decide on action needed after the biopsy results come in.
Happy shopping to you all! Love ya

Tuesday, December 2, 2008

Still Being Thankful

I am still so happy that I was able to spend the evening on Thanksgiving with my family and enjoy our wonderful meal together! Everything tasted so good. I know that God had his hand in my non-nausea day! I got to spend the evening with my sweet grandbabies, too. I think they all took a turn sitting in my lap so I could give them hugs and kisses. It felt good.
I went to get my chemo yesterday, and just as it has been in the past - my blood count was too low. This time the neutrofil was 600. The nurse told me if it had been over 1000 that they would probably let me have my treatment. We'll see if it goes up any by next Monday.
Chelsa was my chauffeur this week. She was supposed to go last week but I was feeling so lousy and Ronnie needed to be there instead. Anyhow, I loved being with her. I don't get to see her anymore.(Of course, when I think about it, I don't get to see hardly anybody very often!) We talked from the time I got into her car until the time she dropped me off at home! Surprise, surprise! We talked about how we don't get to see each other now after lots and lots of years of seeing each other 3 times a week.(except the 4 years or so she was off at college.) It makes me try to be more aware to not take people and the time we have together for granted. But you know, Chelsa and I do talk on the phone at least once every week, so it makes up a little for not seeing her face to face! Anyhow, thanks Chelsa for driving me and loving me! Hope you know I love you too.
Ronnie has started redoing the shower in our master bath. It was getting old and crumbly. You know how one thing leads to another! He's completely retiling the shower and the floor in the bath, putting new countertop in and new fixtures, painting the walls and cabinets. It will look so good! Of course, then, he is going to start on the hall bath which is going to require lots more labor. We'll just take one room at a time! But all who know and love Ronnie are sure of one thing - it will be done right - may take longer than originally thought - but it will be done right! Know what I mean?
Love you all and miss seeing you. I'm counting down now - 5 weeks left of the original treatment schedule!

Thursday, November 27, 2008

HAPPY THANKSGIVING

Happy Thanksgiving everyone! Yes, it is Thursday and I am feeling a lot better than I did last Thursday! Hooray! I went to the oncology center on Monday with the idea that I wasn't up to getting this weeks treatments regardless of how my blood counts were. I had such a strange, terrible week last week, I guess I had become paranoid. I have decided the steroids are a definite no-no. They did tricks with my brain. Then, I have decided the Kytril also does weird things to me mentally. So, no more of those 2. Dr. Redrow actually let me make the final decision on whether to go ahead or not. I agreed that if he would put me on something else that might not affect my brain so bad I would do it. I know how important it is to stay on protocol if at all possible for the best outcome. This time he ordered the pill form of marijuana to take every 6 hrs. as needed for nausea in combination with compezine. He also ordered me some Ativan to handle anxiety associated with all the chemo. I have taken a couple of the marinol and I do feel a little like I'm on a high!(The nausea maybe changed to hunger also)I also have all my best friends willing to be over here in a split second to make sure my medication is put to good use! Sorry, I'm a very selfish, self-centered person!
We are planning to go to Starla's house around 6:00 this afternoon to eat fried hens, dressing, green bean casserole, orange jello stuff, fruit salad, potatoes and pies. I am hoping I am feeling non-nauseous and will enjoy every bite! Ronnie, Aaron and Starla have been working hard all week to get the inside of her house painted. I can't wait to see the finished product. It's kind of a green/brown/gold color. Pretty!
Well, I guess the next test for me will be my blood test next Monday to see if I finally get the 1 Navelbine treatment.(That's the one that I haven't been able to receive yet because of low WBC..
Speaking of tests - Michelle (who is super-smart!) takes her last test of the 4 necessary to become a CPA. So far, she has passed 2 and waiting on the grade from #3 and takes #4 on Friday in Abilene.
Brandon had knee surgery last week and is still having some discomfort and will get the stitches out next week. He is also going to have the other knee fixed in December. He's not used to being limited in what he can do!
I have had lots of time lately to stop and think of all the things that I have to be thankful for . There are so many, I couldn't even begin to list them all. Mostly, though, God has blessed me with the most marvelous husband ever! What would I have done without him during the last few months? God has also blessed me with a loving family that treats me very queenly. My friends also are my blessings. They are all waiting for me to let them know of something(anything) that I need done and they will gladly carry out the task. Of this I'm sure! I love you all - hope you realize that each of you are a blessing.

Thursday, November 20, 2008

JUST GETTING BY

Hi Everyone!
Well, I did get to have my 2 drug chemo treatment this week! Not that I'm all that excited at this moment, though. Today is Thursday and I received it on Monday and have been my regular-old nauseated self since then. I started taking the new Emend Monday, Tuesday and Wednesday along with the previous Kytril, along with a new steroid the the Dr. thought might help with the nausea and possibly keep my blood count from going so low! I can still take the phenargan along with all these (and I have!) Iguess I have to face the fact that the chemo is mean and I have to just make it the best I can through the rough days.
Amy was able to get off work Monday and take me for my routine chemo. Starla met us there to see what the dr. said this week. I actually didn't see Dr. Redrow, I saw his P.A. and she was very good and informative.
Even if it probably sounds like I am whining (which I am!) my outlook is still positive and I am getting closer to the end of my chemo. The P.A. did say that it has on my chart that I will be receiving radiation after my chemo cycles are over in January. I will have to have 6 weeks of 5 days a week. I guess we'll see if he does more scanning before he starts that! No matter what, I still am trusting that God is watching over me and my family! I do believe Jeremiah 29:11-13 "For I know the plans I have for you," declares the Lord," plans to prosper you and not to harm you, plans to give you hope and a future. Then you will call upon me and come and pray to me, and I will listen to you. You will seek me and find me when you seek me with all your heart". I believe God is giving me this time to seek Him and pay attention to where He is leading me.
I still want to thank all of you who have stood by my side and offered up your daily prayers for me - I do still feel every one of them.
Love you all!

Tuesday, November 11, 2008

Another week off

Starla took me to chemo this week and once again my WBC was too low. My count had come up a little however from a .4 to a .7! I guess this means that my bone marrow is working hard to get me ready for next Monday - the big one again! I am not upset at all about not getting the Navelbine because I do get it every time I get the mean Cisplatin! I'm just getting it half as often as the standard treatment calls for. As I have told some of you, I am just so grateful that I am not depending on the chemo to shrink a cancerous tumor before the surgeon can even go in and remove it. So many cancer patients have to do the chemo before they can have the tumor(s)removed! I still believe that I am cancer-free and this chemo treatment plan is for preventive measures.
I am halfway through the planned treatment of 4 cycles of 4 weeks each. I'm not sure how the holiday season is going to go. I know, I know - all of you that know my habits will swear that this is just this year's attempt to get out of doing any of the cooking! Don't you think that is a little drastic on my account? But when I think about it , I couldn't have very well used as my excuse the neck surgery could I? After all it has been 6 months since then!
I look out at my flower garden and don't see much color left! Ronnie has cut down about half of the cannas and all the other plants that it has gotten too cold for. The mums are now in full bloom - thank goodness for seasonal colors. Ginger called the other day and asked what we were doing. My best answer was that we were sitting on the back porch watching the green leaves turn rust! What a life!
Once again, I ask for your continued prayers and know that I love each of you lots.
Joyce

Tuesday, November 4, 2008

Another failing week

Okay, I have to correct something!
I spoke too soon last week about the whole nausea thing! Yes, the Emend did work the best and I will go with it again. The problem is that they only gave me a 3 dose pack which worked Monday, Tuesday and Wednesday until about 6:00 P.M. Then the nausea came back around and stayed with me the rest of the week! ugh! I didn't get to make it to Gracie's big debut, but Amy videoed it on her phone. Bummer! And yes, I am getting the medication problem fine-tuned for the next 2 weeks of the 2 drug regimen.
Donna took me yesterday for my 1 drug week and once again I was a failure! The neutrofil number was even lower this week than it was a month ago(the first time I failed the test) They again told me to go home and stay away from sickies and practice good hand-washing. ( do I look like maybe I don't wash my hands?) Anyhow, I still look at it as a blessing. Woo-hoo, no chemicals pushed into my veins!
Donna was an excellent chauffeur for me. Yes, I did let her take me the downtown route. It is her favorite route to anywhere! And yes, she did find her way there without any help from me. In all things give thanks! Sorry, Donna, you know that I have to give you a hard time - how else will you know for sure that I'm feeling better? But on a more sentimental note, last week I talked about Kerri and I spending so much time together. Well, I probably spent the next biggest amount of time with Donna , so we needed some together time also. Thanks, Donna!
After one more week, I will be halfway through my scheduled treatment regimen. And no, it doesn't seem like it has flown by!
I haven't written about some good news that I got last week! I had applied for Social Security Disability a couple of months ago and have been waiting to hear a denial from them. Well, last week I got a letter stating that I have been approved!!! My first check won't arrive till next March, ( you evidently have to be disabled for 6 months continously before the payments start) but I am so happy! I had been told not to be discouraged if I got a denial because they usually deny first. I was just going to appeal their decision. But I didn't have to figure out how to appeal! Isn't that exciting?
I still love hearing from you all. When I am in quarintine, I don't get to get out and about too much but I am glad the weather is so beautiful. Keep praying!
Love you all

Wednesday, October 29, 2008

MUCH BETTER WEEK!

Today is Wednesday and it is so wonderful when you finally find a medicine that works! I am trying Emend this week and so far it has worked the best. I still have a little queasy spot in the middle of my stomach, but it is not an overall feeling. I have been able to eat a little bit and can actually drink more fluids without feeling like I am force feeding myself! I feel human again!
I need to have a better week because Gracie is the first speaker in the second grade program Thursday night and I have to be there to see her great performance! She gets to welcome everyone to the show! I had to give her bangs a little trim Monday night so she could actually see the audience she was talking to.
Kerri got to be my companion in chemo this week. It was good to spend some time with her - it's been almost 3 months since I quit working. You have to remember that we spent 5 days a week together for 20 years or so. Now, that's lots of together time! Anyhow, I really enjoyed her company and catching up on what's going on. It did remind me that God is in charge of our lives and works everything out. He brought Lindsay back to Azle at the perfect time! Of course, what else should I expect from God but perfection? Kerri and Lindsay are working on new projects and some old ones that we had started when I was there. With Lindsay being here, I am able to erase any thoughts of guilt that might have otherwise creeped in. ( I have been accused of being a worrywart) Anyway, I understand the scripture " Be still and know that I am God". I am still ,and I know that He is working everything out. Thank you God!

Friday, October 24, 2008

Good to go again

Yea, I finally passed a blood test! Starla took me Monday to the Dr. and my blood work was finally back up to normal. I told her that I wasn't so sure that I should be excited about it being back up because that meant the horrible chemicals in my system again. Well, I was right to feel that way. Today is Friday and I am just now beginning to feel human again. I tried the new nausea medicine this week and I'm not sure it was for me. I had a headache and still had to supplement it with the old standby, Phenargan. So, needless to say I pretty much slept this week away! Next week , I'm supposed to get the double treatment again so please pray that I tolerate it better than I did this week.
I keep myself as positive as I can by reminding myself that it is only temporary. I only have 5 more treatments of the double meds. In the long run, if I sleep away a few days, it won't matter so much. I do miss seeing my sweet grandbabies, though. I'm sure that they know that I love them and will see them as soon as I feel better.
Keep up the prayers on my behalf. I still believe that they are powerful and effective and that God knows me personally and is with me every step of the journey!
God bless you all!

Tuesday, October 14, 2008

Another week off!

Well, Shara took me for my chemo yesterday and once again I failed the blood test! ( you know how I hate to do anything but 100 on a test!)My neutrophil number was the same as last week(700) but my total WBC count had come up. The nurse told me that sometimes that happens. There is a medication they can give me to help my WBC but they like for my bone marrow to bring it up on it's own. I am already scheduled to see Dr. Redrow next Monday so we'll see what he wants to do about it. Meanwhile, I still have to stay away from anyone who is sick or might have been around the sick.
We are going camping tomorrow (Wed.) and coming home on Sunday. The weather is supposed to be nice for the weekend so I'm looking forward to getting out of the house! The Geary's and the Foxes are going too. I'll be taking my beading bag with me so maybe I'll get creative. It will all be according to if my brain is working or not. All of you know that lately it's hit and miss!
I miss seeing my babies but maybe they'll remember who I am when my blood decides to cooperate. Gracie is waiting for me to be better so we can bedazzle her new jeans. Now, that will be fun.
No other new news for this week. I miss seeing you all and appreciate the visits I did have last week. Love you all!

Tuesday, October 7, 2008

What a Bummer!

Well, I'm bummed! Starla took me to get my easy week of chemo yesterday. We got there at 8:30 and got my blood work done. They called me back in about 20 minutes and sat me in a different area.(I should have known then that something was up) The nurse came over and told me that my white blood count was too low for me to receive my chemo. The neutrophil part of is was at 700 and what I could tell from the lab report - it should be 1500 or above. She told me to go home and stay away from sick people and practice good hand washing and drink lots of fluids. I asked her if this was going to bump me back a week in my chemo schedule. She said that it wouldn't - that next week to come in at the scheduled time and continue as if I had had the treatment this week. I guess I should be glad that I get a week off from getting chemicals put into my body! Ahhhhh, maybe a few days without feeling nauseated. In all things give thanks!
My hair still has not thinned too much. I do find hairs laying around the sink and on my clothes and I can tell that it is thinner than normal but I don't think it's too obvious. The doctor told me to expect it in about 2 weeks and that maybe it would be about half of my hair that would fall out.
I'm still going to go wig shopping as soon as my quarantine is over! Ronnie is not going to let me get out too much this week and if anyone is able to make it inside the house - you can be assured that he will be worse than he was when our children were newborn! If any of you were around then you will remember that no one touched the precious newborn without first washing your hands! Oh, to be loved and protected!
I've got some Bible study work to catch up on this week, so I'll be busy. I have started the Experiencing God study. I first did this study about 11 years ago and it was life changing for me. My Bible study group (that used to meet on Mondays but now has changed to Wednesday) started it about 4 weeks ago and I'm trying to stay up with them. So far, I haven't been able to meet with them and I miss seeing them, but I know they are with me in spirit! I'm there with you, girls!
I love hearing from all of you. I have saved all your precious cards and go through them when I'm feeling down. I feel the love and prayers!

Thursday, October 2, 2008

Nausea - Not Fun

Okay, I have 2 weeks down now - 14 to go.
I have found out that the drug Cisplatin is mean and is notorious for causing nausea! I hate to throw up! It doesn't hit me until about 36 hours after the treatment - I guess it takes that long for my body to go WHAT'S GOING ON! Anyhow, there are all kinds of nausea meds. out there but so far we haven't found the one that works best for me. It's trial and error. The phenargan works pretty good but I'm sooooo sleepy! The nurse told me yesterday that she would order me some Kytril for my next round of Cisplatin. Thank goodness it is the one I only get twice a month! The next 2 weeks will hopefully not be so bad because I only get the Navelbine (which should only take about 20 minutes to infuse.
Ginger took me for my treatment on Monday. We had enough time to figure out how to work Starla's laptop and watch a whole movie! I sure does help make the time go by quicker! It all went very smooth - I'm so glad someone is going with me every time - blessed with wonderful family and friends!
I'm still waiting for major hair loss. So far, so good. I think if it is going to happen it will be in the next few days. I'll keep you posted. I have blinged up some caps just in case! Oh, to have something to occupy my mind and my time! There's nothing like sparkles! I know there are some of you out there that think that plain is better - it makes me sad for you!
Keep up your prayers - I still feel their power! God is good and knows what I need and He is providing! Love you all!

Tuesday, September 23, 2008

1 DOWN - 15 TO GO!

Well, I made it through my first chemo treatment! I was nervous going in. The nurse even asked me if I was nervous - it must have shown. I told her that I had been calm and confident up until Sunday and then it hit me that I was about to get foreign chemicals going through my whole body! She said that was a very common reaction. Anyway, it took from 9:45 till 3:30 because I had to have blood work, see the Dr., see the financial counselor, then wait for my turn to go back to the infusion area. The actual infusion took about 3 hours. The first 2 weeks I will get 2 drugs - Cisplatin and Navelbine. Then the next 2 weeks I will only get the Navelbine.
Starla stayed with me and brought her laptop so we watched a movie! Ah, modern technology! Amy even surprised us and came up to see if I was doing okay. Seeing some of the patients in there really made me see that I don't have it bad at all! I do remember when Wendell first went to M.D.Anderson. He called me and said as he was walking those long halls to his different tests- he looked at all those patients and said "look at all those poor people" then caught himself and said - I am those people! That was kinda my reaction yesterday!
I made it through the infusion very well. In fact, after I got home I went ahead and took the nausea medication that they gave me yesterday even if I didn't feel nauseous. Well, I'm glad I did! About 2:00 a.m. I woke up and sat up straight in my bed with a feeling of something coming up! It didn't though, and I took another pill and spent the rest of the night sitting up in the recliner. Today has been better, but I am taking my pill every 6 hours! Hopefully it's a 24 hr. nausea!
I am going tomorrow for a brain M.R.I. No, nothing is wrong, we are just doing it for a baseline in case something is going on later. I had read in a lot of the information that I have been given that for my type and stage of cancer that this test should be done.
I have to tell you one more exciting thing that happened to me last week. I went to Richland Hills Church of Christ on Wednesday evening to their special service on letting God work in your life for healing purposes. Amy,Brad,Starla,Aaron,Brandon,Michelle,Donna and I went. While the praise team led songs,( and yes, Wendy was there singing for me!) there were probably 20 elders and their wives stationed around the perimeter of the building waiting for people to pray with. My group went with me to one of the elders and he said the sweetest prayer for me and for my family. I felt so covered after I left there. Ready to face what was before me. God is so good.
I still haven't made the wig selection - if it is supposed to happen it will come easily, right?
I still feel all of your prayers said on my behalf - it is strong and powerful. Keep it up!

Wednesday, September 17, 2008

To Wig or Not to Wig

Well, the time is getting closer for me to start my treatments and I have mixed emotions. I feel like I finally have my strength almost back so I'm ready physically but am I ready emotionally? I want to get it started so I can get it over with! I pray every day for God to give me the comfort that only comes from Him. I do still feel every one of your prayers and feel so cared about. I told someone the other day that I feel very selfish because I act like the world is revolving around me. If I have acted like that toward any of you, please forgive me - I know that there are so many people out there that have it so much worse than me.
Starla and I were able to go to the American Cancer Society on Monday and look at the wigs and scarves that they have to offer. Did you know that they are free there? Well, unfortunatly, there was nothing there wig-wise that even remotely looked like me. There were some cool black, long, straight ones that looked real cool on but were definitely not me! There were also some there that looked like some old ladies that I have seen! Anyhow, my girls don't really like the idea of me wearing a wig and my hair may not be falling out. We went to a wig shop over by the mall and found one that looked pretty good and matched my pre-brown hair. It had a scalp that looked real, too, but it costs $250.00! That's a little much especially if I am not sure if I will need it. I did find a real cool brown sparkly cap that I got at the A.C.S. I have something to start with!
I went for my 6 week after surgery check-up today and he said that I still had a little fluid in my lungs but not anything to worry about. If I feel up to it in 4 weeks I will have another chest x-ray done and go see him again. Otherwise, he said everything was going good for me. I still have a nagging cough, maybe a combination of allergy and lung fluid! Everyone around me is sick and tired of my cough! Me especially!
Keep letting me hear from you! I love it!
'

Wednesday, September 10, 2008

The Port - Ouch!

Well, Monday I went to Harris Hospital for outpatient surgery to insert the port in my chest that I will be receiving my chemo treatments through. I had to be there at 9:30 for all the pre-op but I didn't end up having the surgery until about 2:30. The wait for me wasn't so bad, but for Ronnie, Starla, Donna and Steve - it must have seemed like forever!
The procedure only took 30 minutes or so and I woke up and was back home by maybe 6:00. But, oh the PAIN. My right shoulder hurt and my port site hurt so bad. Mr Vicodin and I were friends that night! I kept and ice pack on and off while I was awake and by the next afternoon, I felt much better. I never even thought about that hurting so bad. Maybe I'm becoming wimpy! It sure is nice, though , that I can sit around in my p.j.'s all day long! Ginger came over to see me at 8:00 P.M. and I was still in the p.j.'s from the night before!
Today(Wednesday) Ronnie, Amy and I are going to the training session at the oncology center so we will be prepared for the upcoming 16 weeks of treatment. I am mentally ready for the journey before me - thanks to all your prayers on my behalf! I feel every one of them so keep it up. I'm also so appreciative of all the cards that I have received. That is so uplifting to me when I'm sitting around, not getting out too much. I love you all!

Thursday, September 4, 2008

Short Brown Hair!

Well, I look at myself differently now - literally. Now, before I get started with my rambling, I have to tell all my friends that have beautiful brown hair that I am not saying anything negative about their hair color! There are certain of my friends that are laughing now and saying "I seem to recall you saying something negative about brown eyes, too!" I love brown hair and brown eyes, but when I look at the mirror, I'm not used to seeing that on me!
When I went to the oncologist last week, he said that my hair wouldn't necessarily all fall out but that it would probably thin out and get brittle. I asked him if it would be a good idea to go ahead and cut it short. He said it wouldn't be a bad idea. So, last Friday I went to the hairdresser with about 6 pictures of short hair and let her decide which look would work best for me. She cut it all to about 2 inches long on the top and kinda short layered in the back. I'm guessing that she cut off about 6 inches.
I looked at myself in her mirror after she had dried it and fixed it and just stared. She was afraid that I was upset that it was so short. It wasn't the short that caught my gaze - it was the brown! Now, for years (as so many of my friends and comrades have done) I haven't known exactly what my natural hair color was. Sound familiar? I have had blond hair for 54 years(I didn't have any hair until I was 1!) , either naturally or by artificial means. I hadn't had my highlights touched up for about 5 months, so I did have roots growing out. When I looked in the mirror, I saw quickly that I had at least 2 inches of roots! The haircut is real cute and real different than I have had in some time, but I now have to put "brown" on any questionnaire that asks my hair color! I'm getting used to it and boy is it easy to fix!
Enough about my hair! I went to the dentist last week and found that I need 2 crowns done before I start on my chemo. I go today for the first visit. One thing seems to lead to another, doesn't it? Next Monday, the 8th, I go for outpatient surgery to Harris Hosp. to have my port put in for my chemo. I'm so glad they are doing that! I dread getting I.V's. It will be a long day, but I will come home when I wake up good. Poor Ronnie! He is such a trooper, but as you all know, he doesn't do waiting at hospital very good! Again I say that God has blessed me, especially with such a wonderful husband. And by the way, we celebrated our 37th anniversary last week. I felt good enough to go out to eat at Lucilles!
Keep up your prayers for me and my family. I feel every one of them!
Love you all.

Monday, September 1, 2008

Words from Sherry

The following is a letter I received from my sister-in-law Sherry. She is awesome! I can't say anything better today than what she has said to me. I have already told you that I am listening for God's whispers. This letter is what I received this morning:

Whispers of God”

I started “Whispers of God” when I wrote to Joyce, my sister-in-Christ, who had been diagnosed with cancer. She had an operation and was waiting to recover from surgery only to start 16 weeks of chemotherapy.
I wrote to Joyce to give her testimony of God’s whispers to me when I was diagnosed with leukemia and ultimately had a bone marrow transplant that God used to heal. Today, there is no sign of leukemia.
I told her of the many times that I would feel afraid or insecure and how God would show up to gently whisper comfort and His presence in my life as only He could. These whispers were not something I was looking for but, a gift, a gift from God to let me know He was there and knew me intimately. He heard my cries and answered my prayers.
After writing and sending the letter to Joyce, I was up early one morning, reading my Bible. I was reading Psalm 107:23 – 32. This scripture read “He stilled the storm to a whisper”. My heart was in awe as I knew the Lord gave that scripture to me and I believed it was for Joyce. I researched a little further that day for scriptures that had the word “whisper” in it. He gave me the scripture I Kings 19:9. “And after the fire came a gentle whisper. When Elijah heard it, he pulled his cloak over his face and went out and stood at the mouth of the cave.” Life application would say “Elijah knew that the sound of gentle whisper was God's voice. He realized that God doesn't reveal himself only in powerful, miraculous ways. To look for God only in something big may be to miss him because he is often found gently whispering in the quietness of a humbled heart.” I sent that to Joyce as well.
The day after I sent these scriptures to Joyce, my mother said that the Sunday sermon’s title was “The Day God Whispered”.
Today, after I prayed for forgiveness of sin and rebellion in my life. I was wondering how I could ever feel cleansed from all my sin and shame. I was reading Psalm 51. The Lord whispered. “Cleanse me with hyssop, and I will be clean; wash me, and I will be whiter than snow”. In Exodus, it tells of how “The Israelites were instructed to dip a branch of hyssop in lamb’s blood and sprinkle it on their door posts so that the angel of death would pass over their families (Exodus 12:22). My heart was in awe of his whisper. Just as he instructed the Israelites to sprinkle lamb’s blood over their door posts to save them, his whisper was saying to me… Jesus blood covers my sins. Thanks be to God for my Lord and Savior, the Holy Lamb of God, whose blood covers all my sins. Thank you God for your whispers.

Saturday, August 30, 2008

The Wreck

This part of my journey begins on March 27,2008. I was leaving work at a little before 5:00 and was approaching the elementary school on Jackson Trail. As I got closer to the teacher parking lot, I noticed a convertible with the top down approaching the exit and not slowing down. And as I had feared, she pulled out right in front of me, not stopping but actually accelerating! I hit her broadside! Her car spun around and hit a tree. I pryed open my door and was afraid I was going to see a terribly injured person. She just had a few scratches on her and was able to climb out of the car. She immediately talked about how I was going to sue her and she was so sorry. In a panic, she had pushed on the accelerator instead of the brake! I assured her that I was not going to sue her, but was she injured? The next words out of her mouth were ones that I didn't want to hear: It wasn't her car; she didn't have a driver's license; she didn't have insurance; she wasn't wearing a seat belt and she had found out the day before that she was pregnant! I insisted that she get someone to take her to the emergency room. She did receive a couple of tickets. An examination at the e.r. showed that she had a concussion but the baby seemed okay. Tragically, I found out later that she did loose the baby a couple of weeks later.
I felt all over my body and didn't seem hurt. Unfortunately, our precious 14 year old truck did not fare so well. It was totalled. Luckily, we had uninsured motorist coverage with our insurance so this helped us find another vehicle - a cute little P.T. Cruiser. I went on for a couple of weeks before I noticed that I was having headaches and my left arm was beginning to hurt terribly bad and my pointer finger was going numb and tingling. Eventually, I went to my doctor, Kathy Brooks, and she sent me for an MRI and to a surgeon. Amy went with me to the surgeon and he confirmed that I had 2 bulging discs in my neck and would require fusion surgery and a metal plate put in my neck! Well, along with paying for my truck, my uninsured motorist covered my surgery and lost wages associated with it.
I did really well during the surgery and 9 week recuperation. The worst part was probably the neck brace that I had to wear! In preparation for the surgery , there is all the pre-op testing. Part of the tests is a chest x-ray. On the afternoon before surgery, the hospital called and told me that I might have to postpone my surgery because a mass was shown on my x-ray. I couldn't believe it. Kerri called Kathy Brooks and Kathy called the radiologist who read my x-ray. She told him that she would follow up with checking out the spot on my lung after I had the neck surgery - so I was able to go ahead with the surgery the next day. Kathy was my hero!
True to her word ( and mostly her concern for me) about a month into my recovery, she scheduled a CT scan of my chest. She went ahead and scheduled me to see a lung surgeon(Dr. Macias) and get the reports. Ronnie and I saw Dr. Macias on July 14th. He said that the ct scan showed something that needed further testing. He scheduled a PET/Ct scan which would show up any cancer in my body. I had this test done on July 16th. On July 23rd, Ronnie and I went to Dr. Macias office to hear either I had cancer or I didn't. Well, that's not what we found out. The test showed mild to moderate activity in the mass in my lung but was inconclusive as to whether it was a malignancy or not. More testing needed! This time I went for a biopsy on July 30th. The radiologist who did it was almost certain that it was not malignant but we needed to wait to get the report back from testing . I had made an appt. for Aug.14th to find out the results. But, to my surprise, the dr. office called and said the results were in and to come in on the 5th.
Kathy called and said she wanted to meet Ronnie and I at Dr. Macias office at 3:30. With the 3 of us in his office he said the dreaded words "I'm so sorry but we got the results back and you have adenocarcinoma - lung cancer!" We were stunned! He said that this kind grows pretty quickly in women so we needed to do surgery quickly. By the time I had breathing testing and all the pre-op done , surgery was done on Aug. 8th. I again did very well . They removed the lower left lobe and the surrounding lymph nodes and part of the upper lobe that the mass was touching. The results of the biopsy for this showed that it had spread to one lymph node but not into the blood vessel next to it. Because of the activity in the lymph node, I will have to undergo chemotherapy and possibly radiation. It is scheduled to start on Sept. 22nd and go for 16 weeks straight - one day a week.
I am not afraid because I feel God holding me in the palm of His hand. I do realize because of what Mother and Wendell went through, that it won't be a picnic, but I remain positive that I will make it through it all and come out a better person - because I know that I couldn't do it without God and without all of you praying for me!
God also blessed me with a wonderful husband. Ronnie has waited on me hand and foot for the last 3 weeks. I do realize that I am also blessed with a wonderful support team that would come anytime I asked.
I ask God daily to protect my precious children through all this because I know how hard it is on them.
I covet your prayers on my behalf and hope that when I'm called on to help someone, that I don't hesitate to do whatever I'm called to do.
I am listening for God's whispers!

Friday, August 29, 2008

God Works In Mysterious Ways


You know how you sit and wonder what changes are going to happen in your life within the next year? Well, a year ago I would not have thought that my future would hold three surgeries and a life-altering diagnosis. But "God knows the plans He has for us." (Jer. 29:11)

I have begun a journal of the things that have happened to me and decided that I would share it with those who know me and love me. (Besides, at my age, my memory is so bad that if I don't write it down somewhere, I will forget the details.) I also hope to use this as a way to keep everyone updated (in case I forget to call you).

Most of all, I want everyone that reads this to say a special prayer for me each time you log on because I know that prayers are powerful and effective.